Fibromyalgia, a slow death: a disease that can take up to 10 years to be diagnosed

Fibromyalgia is not seen, suffers. Fibromyalgia is invisible, but the millions of people who suffer from it are not.

Because fibromyalgia has become a health problem

Although institutions continue to look elsewhere, fibromyalgia is a reality that continues to grow, which does not include social class, cultural level, age or cardinal point. It can start in childhood and get worse over the years, with the appearance of new symptoms.

Far from being psychological, as many have prompted us to believe, the latest research suggests that the world is a neuro-immune disease and endangering all body systems in this way, and may appear on more than thirty different symptoms. . The most disabling are pain and chronic fatigue.

“Fibromyalgia is a chronic and debilitating disease of unknown cause and without effective treatment.”

For many years, he avoided this definition and preferred to blame the patient liar, whining, neurotic, depressive, cheater, victimist … to the point that most of the company believed that fibromyalgia is synonymous cuentista and all the forums are spoken so contemptuous and suspicious of these patients.

The people in question are exposed to a “popular trial” with a verdict: “life imprisonment”, condemned to be stuck in their homes, not to prepare, not smile … because if they do they are redesigned. “It will not be so bad when everything is solved”, “it seems that she laughs, it will not be too bad …”

In addition to being ill, society challenges their right to live and be happy. People with physical difficulties who are successful at a sporting or personal level are examples to follow and inspire admiration, and no one doubts their disability. This admiration and empathy are evident in all diseases except fibromyalgia.

The patient with fibromyalgia who manages to be happy, despite the disease, and manages to succeed, despite the great difficulties, is not appreciated for its strength and desire to excel, nor is it an example of life, it is simply a reason to put questioning his diagnosis and, with him, the professionalism of the doctor who gave it to him.

The fact that the harsh reality of this harsh disease has been denied for so long has caused irreparable physical and moral damage to many people affected.

In terms of health, polypharmacy has been abused and drug addicts have been created and the fact that their environment and society are “nothing” has led to family collapses, harassment, redundancies and unfavorable sentences. inability to work.

When, for all these collateral damage, the patient is overwhelmed by a depression, those who remain obsessed with rejection of evidence are confirmed by the fact that “his problem is psychological”.

Years ago we could justify this “inappropriate treatment” because of the ignorance of the origin of the disease, but after thirty years it does not work anymore. Even if we do not yet know what the origin is, even if there is not yet a measurable indicator, it is time to take responsibility and start looking for it.

Because fibromyalgia has changed from a health problem to a social problem. It affects 5.4% of the population, 92.7% are women at risk of social exclusion.

“Fibromyalgia is a chronic disease and debilitating disease of unknown cause and no effective treatment.” This is a direct and easy to understand sentence, it’s time to accept, take responsibility and act accordingly for example by investing in research and resources for appropriate treatment of the disease.

Fibromyalgia is not just a pain, as someone says, as if it were not a lot. It affects the whole organism, so that the patient passes from specialization to medical specialization, for years, until finally getting a diagnosis that does not help much because the prescribed drug does not make the pain disappear.

The result is an extraordinary expense for the health system and wasted time for the patient, which adds to his symptoms the side effects of polyphoria and frustration. Frustration is also shared by doctors who want to help the patient, but feel helpless because of the lack of time in consultations and resources to serve them as multidisciplinary as they deserve.

The solution is to have the political will to invest in the research and training of the medical experts who manage these units. This form of assistance would be less costly for the system and would improve the patient’s quality of life and hence the family and professional environment. Perhaps one of the reasons why it is not studied is because “fibromyalgia does not die …”



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